Dejon  
“Please say a prayer for Dejon!!! We are on our way up to the ER. The mass behind his ear is extremely large and he is in a lot of pain!!”

Owen 
“pray tomorrow at 1:30 CT for a successful surgery - and then at some point a successful extubation.”

Graham  
“one of the three shunts in his head is malfunctioning. He is going in for surgery later today to have it repaired.”

Jason   
“has multiple tumors on the lungs and the ones that were already there are growing, he has one on the left shoulder and 2 next to the esophagus on the left side. He now also has some on the spleen, the tumor that was the size of a grapefruit has doubled in size and now has sprouts that have grown and wrapped around everything. She also said Jason is caring around pounds of tumors…”

Bayleigh
“Bayleigh has been up since 2:00 a.m. sick....I have a call in to the hospital to see if they can prescribe her Emend for nausea... the Zofran doesn't seem to be phasing her nausea...”

Hannah
“Tomorrow is a BIG day - Hannah will have surgery at 10:00 am AZ Time or 8:00 am CST.”

Dee
“Dee was admitted back to the unit today cause his central line is infected. They pulled the line tonight and are placing a port on Friday.”

Noah
“Noah and I are sitting in the ER waiting for a bed in CVICU.”

Alex
“Alex continues to look extremely pale today and now he is running a low-grade temperature.  He is having a lot of dysautonomic crises…”

Braden
“Basically, they were not encouraging, the area of the tumour has not shrunk at all, but we can't tell if this is tumour or just scar tissue.”

Ben
“He has so much pain sometimes that he goes to bed to get relief.”

Tyler
“The aspergillus infection in his sinuses has invaded the bone. Praying that the meds will clear it up. On a patch now for pain as the infection does cause quite a bit of pain.”

Hannah
“Hannah has a bone marrow aspirate/biopsy tomorrow at 6:30am. PLEASE PRAY for no MLL gene expression and as close to 100% donor as we can get.”

Reid
“Reid's scans and his kidneys look good, but they are concerned with his spine. Apparently there is a gap between the L5 and S1. The medical term for it is Spondylolisthesis…”

Ken
“I know dad will never walk, talk, eat by mouth again. He will never be the dad I knew growing up. He is sleeping more.”

September 2, 2010

^^Bekah^^  
“It is with a heavy and aching heart that I let you know Bekah passed away this afternoon with Sharlah and Rich at her side.”

Maverick 
“We had a rough night with the little man. He did not tolerate being moved and ventilator settings were constantly having to be adjusted. Maverick Jeremy was welcomed into our lives on Sunday August 1^st. From the MRI we learned that the mass is a Neuroblastoma. Neuroblastoma is by far the most common cancer in infants (less than 1 year old).”

Baby Braylen  
“TODAY (8/29) BRAYLEN HAS STARTED HAVING REALLY BAD SEIZURES!ONE SO BAD HE COMPLETELY STOPPED BREATHIN THEY HAD TO PLACE HIM BAK ON THE VENT!”

Brayton   
“repeat x-rays today showed his Pneumatosis is actually worse than yesterday despite not having anything to eat or drink for 24 hours.”

Kayleigh “She has however continued to be very uncomfortable and still moans out in pain several times a day… Her heart rate is still way up there…”

Isaiah 
“Poor Zay is another story, though. His respiratory symptoms have diminished, but he is still having the severe retching/choking episodes that are leaving us stressed.”

Bradley
“He is pretty much in/out of it and we don’t know from one minute to the next what will happen.”

Anna
“She has had some really rough days. Pls pray....for she is scared....depressed....heart broken. Sometimes.....it is just overwhelming.....today....this is the case.”

Charlotte
“I asked Charly what the pain felt like, she told me that it was like millions of little bears and wolves ripping at her inside.”

Nayt
“Nayt's fever has returned. They are now at the Hospital. His fever was 38.6 and rising.

Courtney
“Courtney's bone marrow test today did not yield the results we wanted to see…Courtney has absolutely no white cells in her bone marrow.”

Gaby & Clari
"We just need to get the pain to a tolerable level so that it can be managed from home. Today we switched all the IV meds to oral and have decreased the doses. Gaby has been having a rough week.”

Zach
“Zach is doing worse today then he has all week - the only positive I can come up with his he only has a low grade fever now.”

Kaitlyn
“For me, things are still going downhill. The pain and nausea is almost constant to the point I'm barely functioning, my quality if life being pretty bad.”

Morgan
“Morgan's tumor has grown 4 mm since our last visit. The doctor's told us that the only thing left that they can do for her is to try to surgically remove it. They can not do any further radiation and chemo is not effective in the brain.”

Jack
“It is with complete devastation that we must report that Jack's cancer has returned.”

Jackson
“Cryptosporidium! Yep a nasty little bug. It is a teeny parasite that is next to impossible to kill.”

September 1, 2010 

^^Cody^^   **NEW**
“We write this today with heavy hearts saddened by ALL of our loss!! Cody Michael Mading Passed away today at 7:00 am.”

Alex   
“Pray, pray, pray! We are down at the ER with Alex mainly because of his continued blood pressure problems…”

Julian  
"Tomorrow Julian has two biopsys one form his lungs and one from his bone marrow.”

Bradley  
“Bradley is in PICU with pallative care (Ewings Sarcoma relapse). He passed away last Wednesday, but God breathed a breath of life into him. He is still holding on, but we believe it is for his birthday. We are celebrating his 18th birthday today, as we don't believe he can make it until Friday (his actual birthday). I feel once he has his party, he will let go and run to Jesus. Please pray for peace and comfort for him on his passing, along with our family.”

Brayton
“Brayton's doctor, Dr. Kolb, was very alarmed with the results. He has lots of air in between all of his bowel walls which is the cause of his extended abnormal shaped abdomen. Brayton has been admitted to the BMT unit at Dupont Children's Hospital.”

Devonne
“We are gearing up for another LONG admission here at "Hotel Strong".”

Rayne
“We were called by the hospital this morning and informed that there is bacteria in Rayne's blood. We have been admitted to Northshore hospital.”

Tiana
“when we got her into her room she plunged down hill very rapidly.. she was a little dehydrated so they were only hydrating her when she began vomiting…”

Sara
“Sara's skin has not healed up in the way that we needed it to.  If I understand correctly, they are going to pull this line & hopefully place a PIC line temporarily in her arm until her chest can heal up.”

Jason
“I did find out the reason they want to go ahead and do surgery first is that the cancer is spreading.  There is a tumor on the esophagus now.”

Brian   **site password**  askseekknock
“The results revealed some disappointments and some hard news.  I have some progression of the primary tumor, so a change in direction was taken.”

Brandi
“She will start her radiation treatments at Vanderbilt tomorrow on Wednesday September 1st.”

Preston
"The plan St. Jude is to get the donors marrow on august 31st and Preston would go to transplant on Sept 1st, my birthday!!!" 

Jessica
“I get a bone marrow biopsy, central line change, multiple scans…”

Noah
“Yep, I noticed this afternoon that Noah had a mouth full of open sores, with red spots all over the roof of his mouth.”

August 30, 2010

Stevy
“The doctors thought it was probably her gallbladder.  Sure enough after doing an ultrasound it showed that her gallbladder is full of sludge causing tremendous pain.” 

Clari
“The hard times continue. Just like yesterday, she seemed better in the morning then goes downhill after noon and then is pure hell from there on. She has become incontinent since yesterday, another CT Scan (this time of her chest) and another MRI were just done today.”

Chase
“Today, Brant and I accomplished the single most difficult thing I believe we will ever have to do.   I had to look into the eyes of the most beautiful 12 year old boy who has been through sooo much knowing he is thinking this is just another setback and have him look me in the eye and tell him, "You will die from the leukemia."”

Caston
“Caston is ok but is back on vent till tomorrow. He was coded y'day morning and flat lined for 10 sec. He got strangled on his secretions, which happens.”

Jillian
“Received a phone call Friday evening -- results of blood work show high levels of pneumonia.  Left for the hospital last night at 7:00pm.”

Zach
“Even with his g-tube we are having problems getting fluids into him – his stomach just does not want to hold any volume and he is retching very quickly during feeds.”

Tyler
“Well it’s been a long hard week. Our journey with Tyler seems to get better then worse.

Kaitlyn
“Had a real bad day with nausea and pain…I'm anemic again despite taking vitamins…”


August 29,. 2010

^^Aisylin^^
“This morning at 8:05 Aisylin took her last breath.”

^^Nora^^
“Nora has just earned her angel wings.”

Carey  
“Please pray for Carey last night she got a fever of 107.5 and the doctors say that she may end up in a coma” Update from Facebook

Caden  **NEW Diagnosis**
“Monday we will have another bone marrow aspiration, a spinal tap and a port inserted to begin treatment.”

Cody  
“Cody is not doing good. He struggles for his words, he can’t walk to the bathroom on his own, he has lost his appetite, he can barely move his right arm/hand, the pressure in his head is giving him headaches…”

Taylor  
“Taylor has spent nearly all day in bed. She is very weak today and has been having increased pain throughout her body. The weakness is worst in her legs but is also in her arms.”

Amayah
“The past 32 hours have been rougher than rough. We are now at 45 fentanyl and 4.5 versed.”

Cody
“As we wait for the arrangements to be made for Hospice, we sit here making sure Cody is comfortable.  He told me that he is tired, and can't go on, and wants to go home.”

Arwen
“Arwen was up most of the night with seizures.”

Aspen
“August 30th she will get her heels clipped.”

Alex
“I have surgery on Monday so knock on wood, cross your fingers, and pray everything goes well.”

Trevor
“It's been awhile but we are back in hospital. Trevor woke up around 3 am this morning with a fever and swellness on the right side of his chest.”

John
“At five thirty John was admitted to the ER…As the week wore on, John began to decline, arriving where we are tonight.”

Kelly
“She will have surgery this Monday to take the old port out and have a new one placed.”

Tyler
“The final pathology report show the fungal infection is Aspergillus. He also tested positive for staph, bacterial infection, and strep!  He started coughing yesterday and temp was 100.1 about 1:00 am this morning.”

Zach
“Waiting on another call from the doctor...Until 1:00pm hit and BAM Zach has a 103 fever…”

Carly
“Carly has scans Monday

Savannah
“She is scheduled to begin another round of chemo next Monday & will have scans after that.”


August 28, 2010


^^Kenzie^^  
“I write with a heavy heart that Mckenzie Elizabeth Brownlee earned her angel wings tonight at 10:47pm she was a fighter and would never give up not even until the bitter end.”

^^Quincy^^
“On a beautiful August morning in eastern Kentucky Quincy earned his wings and flew through the cloudless sky home.  He was very much at peace as he was surrounded by Ben, Leigh Ann and Melody.”

^^Kara^^
“This afternoon Kara left her pain and suffering and sped away to Heaven.

Nora
“Nora is doing so poorly that they won't do the cath procedure.  She may even need and heart and lung transplant considering the poor function of her left lung.”

Ryan
“Please continue to Pray for Ryan...He is having a lot of pain.....They finally gave him a pain pump.”

Liam
“This is the most aggressive his disease has been and it has put Liam in a very dangerous place. He is weaker than he has been in a very long time and suffering from the effects of radiation and now the chemotherapy…”

Anna
“Anna has struggled with a great deal of pain the last 2 nights.”

Nikki
“The doctor came in and explained that she was not having a allergic reaction, she was having a severe side effect from the Zometa and to come back if it gets worse. This pain can be very bad for 3 to 4 days, moving to other muscles or joints and can last up to 2 weeks in rare cases.

Hilary
“I am in tons of pain and have been given some pain meds.”

Ivory
“Ivory is staying the night tonight. She is having high blood pressure and some pain”

Kaycee
“Kaycee had another rough night last night.  She became sick to her stomach again and then began to chill and run fever…”

Steven
“I was handling the situation OK... until the paramedic asked if Steven was DNR. Wow that hit me…”

August 27, 2010

Briahna 
“a CT scan which showed that she has a small epidural bleed in the bottom back part of her brain. They admitted her to the hospital to monitor the bleed…It appears Briahna may have a spot on the right temporal side of her brain that looks like a low grade neoplasm (tumor).”

Julian 
“Today we received some devastating news from Julian’s biopsy that he had yesterday. The cancer is still there and the doctors said the leukemia seems to be winning.”

Jack   **nephew of a Cole’s member
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
“At Arkansas Children's hospital with an undiagnosed heart/lung issue. He is unable to maintain proper oxygen levels in the blood without oxygen assistance. His name is Jack Jones and is 4 1/2 months old. His older sister, Maia, died of this "disease" in 2008 at 5 1/2 months.  The doctors are going to perform a Heart Cath on him Friday to try to determine if there is a problem with the anatomy of the heart. This is considered a high risk procedure…”

Bekah
“Bekah's having a really difficult day. She has a horrible cough and cries every time she coughs because of the pain.  She's so exhausted because every time she falls asleep her sats drop and she has to be woken up again.”

Clari  
“She is still in very bad shape, the pain is relentless. It hasn’t gotten better at all. The plan for today is to do a spinal tap so that they can rule out meningitis…”

Tyler
“In the helicopter on the way to CHLA. Tyler is stable but doesn't feel well.”

Hailey
“The tumor was still there and was the same size. He said to be at the hospital on Friday at 7:00 and he would crack her head open shortly after that.”

Anthony
“The plan is still for the surgeons to put a line back in Anthony on Friday this can be a difficult surgery due to the clots in his chest…Please pray for Anthony's pain and agitation to be under control…”

Ivory
surgery

Alyssa
“This Friday, Alyssa will be having outpatient surgery by a plastic surgeon to remove several (late effects) beauty marks/moles whatever ya want to call them. She has some on her feet amongst other places (neck, back, head…) that they will remove and biopsy…”

Andrew
“The surgeon did not feel Andrew was in a place that would be good for a good outcome for transplant. So they cannot list him.”

Zach
“Surgery itself went fine it was the afterwards we are still struggling with. His geneticist is hoping to get him out of the hospital ASAP but says the next 12 hours are critical for him.”

JP
“He is still retching some.  His blood pressures are HIGH.Bottom line is...we haven't made much progress in the last 9 days.”

Devonne
“To say that he has been miserable would be an understatement at this point. His nausea is SEVERE, and he is barely eating. His belly is very distended and he is having frequent episodes of diarhea. The pain medications only work to a certain point…”

Gage
“CT scan confirms that while the growth is nominal at the moment, the disease is progressing in the mediastinal and para-spinal mass.”

Colton
“The long and short is that this monster has somehow crept back into our lives. We are devastated.”

Brandon
“We met with Dr. Alousi today and received results of biopsy - live cancer.”

Jim
“Sad and disappointed describes our mood right now but yet we know that there is more to this life. Our oncologist told us today that the cancer appeared in a new place in the right lung as well as in one lymph node near the windpipe.”

Tina
“Scared! Afraid! Unknown! Worried! All of these words I know once again am! As of now I can no longer do Avastin.


August 26 2010

Aisy
“Aisy had a rough night last night.  She is struggling to breath, especially when she is on her back.”

Carter
“I am worried most of all, about Carter having GVH.”

Beth
“is scheduled for an ultrasound on Friday (8/27).  This will give them a better look at the spleen.” 

Bekah
“Bekah took a turn for the worst last night. Bekah is having a very difficult time and I see her energy withering away.”

Brooklyn
“She has been scheduled to go in next Thursday August 26th @ Levine Children's Hospital for the procedure to be done and will have to remain in the hospital for 2 days.”

Zach
“Zach’s surgery is rescheduled for Thursday August 26th.”

Ryan
“Ryan is headed back in tomorrow for major surgery again.  Please continue to lift him and his doctors in Prayer. Dr. Rizzuto will be separating his skin from his back muscle on each side pulling the muscle down to d close his back finally.  Dr. Tally will once again try and repair the spinal fluid leak...”

Hilary"
surgery will be on Aug 26th unless something changes that. Please pray that I can get my back fixed this time."

Jonathan
“Jonathan is still scheduled for his tonsillectomy and adenoidectomy on August 26th.

Nora
“Nora's kidneys have taken a hit with the diuretics and it is about all I can stand at this point. She just looks worse and worse and she is on more vent support than ever. She has been throwing up a lot. It makes me sad.”

Quincy
“Everyday is becoming harder & harder watching Quincy deteriorate.  He is sleeping a lot now.”

Connor
“We are still watching his liver and kidneys very close.  His kidneys have been acting up the past month.  They are still functioning, just not well. 

Eithene
“we are still in the ICU step down unit.”

Courtney
“Courtney is still in the hospital. Her counts are still low. Her ANC has been 0…”

Evan
“We received some devastating news on Friday.  Evan now has significant disease in his spine. There are several fast growing lesions that are threatening to cause paralysis. All faint hope of curing Evan with more therapy is gone.”

Bryson
“I got a call saying that his ALK-PHOS level on his CMP blood work had come back very elevated. There could be a couple reasons for this one being liver issues, but his liver enzymes came back normal. The other thing that this can point to is bone disease (cancer now in the bone).”

GW
“He will go from radiology to the clinic where he is scheduled for an LP.”

Stevy
“In fact, she has alot more new cells so they are doing a bone marrow aspiration and biopsy tomorrow.  Please pray that the leukemia will continue to be in remission.”

Reid
“GFR (kidney function test) Thursday and admit to the hospital on Friday for 5 days of chemo.” 

August 25 2010

^^Jensen^^
“ ^^   Jensen Daniel Byrd   ^^   April 7, 2005 - August 24, 2010”

Luke  
“His left lung has always had a problem with expanding and filling with air completely. The past 48 hours he has had increasing issues with respiratory distress. His left diaphragm doesn't work very well but it does work.”

Alex  
“Please say an extra prayer for Alex this morning. He is running a fever close to a "bring him in for admission" temp.”

Brooke  
“Brooke is back in the hospital again…Her port that was removed came back positive for MRSA…”

Aisylin
“We have had to increase her pain medicine and Ativan a lot to keep her comfortable. She is starting to get palpable tumors on her back.”

Amayah
“These final days are up and down just as Amayah’s life as from the beginning. The one thing I have really learned is that let God be in control and just watch and learn.”

Christine
“He has me scheduled for surgery on Wednesday. In talking with the rads nurse, her opinion is that they are going to remove the tumors Wed., but I am not completely sure.

Anthony
“Anthony's surgery is at 8:30 AM PST on Wednesday. Please pray for a safe removal of his line and that there isn't any problems or excessive bleeding...”

Luke
“Wednesday he will have another MRI of his lower right leg. The MRI will determine whether or not he will need surgery to remove the primary tumor…”

Jonathan
“Jonathan is still scheduled for his tonsillectomy and adenoidectomy on August 26th.”

Ryan
“Things are still not any better with Ryan.  After I updated last night on CB Ryan's fever started to spike again.  He can go from a low grade fever to 104 in a half hour.”

Austin
“Just when you think it can’t get any worse, well it did. Austin is currently in the emergency room due to Temp of 102.2, a huge insect bit on his right thigh that looks like cellulites and diarrhea for the past 2 weeks now.”

Nic
“Nic now has a STAPH INFECTION in and on his penis. 

Jillian
“I am officially off of the Yondelis trial that was working for me.  My bilirubin is still way too high.  My eyes and skin have turned yellow and no one seems to know what is happening to me.  I am heartbroken and saddened and depressed beyond belief.”

Charlotte
"We spent this morning at Kings getting Charly oxygen therapy and ended up sitting in an isolation room for 6 hours before her oxygen levels returned to normal... Please pray that whatever is going on with her lungs is temporary and treatable!"

Devonne
“His urine continues to be thick and pungent, and he is complaining more and more of urine being "stuck" which is definately VERY worrisome especially with him having in a foley catheter all the time now.”

Kate
“Kate Thornton's doctors have indicated that there are no medical treatments at this point than can bring healing to Kate, only a miracle from God. With Kate's condition deteriorating, we are running out of precious time to bring her home as we promised.”

Delaney
“Delaney isn't dying, but we are out of treatment options and have no idea when this monster will return.” 

August 24 2010

^^Chuck^^
“This is not news I wanted to post but wanted to update everyone that has been so kind to pray.  They found Chuck's plane and body....please pray for his wife Suzy.”  This is Jen’s cousin.  She lost her son, Riley on 3/11/10.

Baby James
“The Dr came in this morning and told me that if James does not tolerate bipap that they will have to Trach him.”

Anthony
“Pray that they can somehow get a line in him even if its temporary so that we don't have to sit in the hospital for the next 30 days.”

Nora
“Nora's respitory status got a lot worse over the weekend... She breathes very hard and has deep retractions along with nasal flaring and chest rising ... all signs of acute respitory failure…”


Dylan
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
“My brother (freshman in HS) is having an MRI tomorrow.  He is dizzy and his pupils are dilating...”  Cole’s member’s brother…

Breylon
“Breylon has had a rough last 24 hrs. Last night Brey had a seizure…”

Dejon
“Dejon has had a rough weekend!! He experienced several severe headaches that Tylenol didn’t help. He is also experiencing difficulty with remembering and saying words.”

Katie
“My MM is smoldering so technically I am not suppose to have bone issues yet or pain as extreme as I do…”

Cody
“Needless to say, none of us really got much sleep.  I think we all were waiting for something more to happen.”

Kenzie
“He does believe they are 63% and that she is more than likely having leg pain due to the leukemia taking over.”

Abe
“Abe has relapsed again. ..The word unfair doesn't even begin to describe having to tell our sweet, happy 9 year old that his leukemia is back again. Abe deserves to be done with cancer, it's been almost 7 years of dealing with it now.”

Samuel
“the MIBG is showing a new tumor in his chest near his spine. It is 4 inches.”

Gage
“Have schedule CT for Tuesday. We fear progression but praying for a miracle it is not.” 

Braeden
“Braeden’s scan will be on August 24th.”

Gabriel
“EKG on Tuesday to see if we are continuing on the Cisplatin/Doxorubicin (spelled as it sounds!) or if we change to something else.”

August 23 2010

Amayah
“Amayah heart is not very happy. We are seeing heart rates from 0 to 234. There are never signs it just happens. She goes from hot to freezing cold and from pink to blue is a matter of moments.”

Jensen
“His color is so gray and his lips blue. He is slowly dying inside…”

Alex
“It seems that Alex has started to have seizure break throughs over the past three days.  He also is falling a lot…”

Patrick
“We could also use a lot more prayers here.  Patrick is running a fever.  He is also in pain.”

Jillian
“Today she is sad and tired and weak and could really use your support and especially your prayers.”

Nic
“We need specific prayer against the following:1.  The CMV virus which showed up on Nic's PCR's 2.  Infection control which is not improving if not getting worse…”

Ryan
“We are still inpatient.  Ryan has been starting to get higher fevers now.  He went up to 102.4 yesterday.”

Creed
“bone marrow transplant”

Cody
“I asked if we could do a CT scan Oh Cody's gut tomorrow and then again Monday and do a comparison to see if fluid is accumulating in the intestines. If so, we have lost the battle.”

Nathan
“Nathan's spine has progressively worstened, faster than the doctor imagined.”

Connor
“Connor is still in the hospital since his cell counts have not started to recover yet.  His mouth is still tender and it is difficult for him to eat.”

McKenna
“I was cleaning our bathroom and McKenna came running in, hit the toliet fell backwards and put her tooth into her bottom lip...”

Ty
“Ty has Scans on Monday the 23rd.. please say a few extra prayers that he continues to stay NED...”

Brian   site password:  askseekknock
“My next MRI is now scheduled for Monday August 23rd in Dallas at Baylor medical.  This one will be a little different than previous MRIs because it will involve profusion and not just contrast in order to better distinguish between necrotic tissue and cancer cells (if any).”

Jim
“We wait with hope for Jim's tests on Monday afternoon, August 23rd…”

Hilary
“I am having a pulmonary test to see how my lung function is. Please pray that it will not affect me having my surgery on the 26^th.”

Nick
“tomorrow we have a dr. appt for xrays on hips and back for nick, also getting his wheelchair adjusted…


August 22, 2010 

Ryan  
“Ryan's in the hospital again. Spiked a fever late on Friday night of 105. Looks like his port is infected again

Codey
“I looked at his neck, he was swollen and rashed all over neck, ears, face, belly…”

Aisylin
“Aisy is retaining a lot of fluid and having a lot of pain. Her tummy is swollen and tight from what the doctor says is likely tumors in her liver causing fluid leakage.”

Jensen
“He is likely developing pneumonia.  He asks for the oxygen occasionally, otherwise won't wear it.  He appears a little blue around the mouth to me.  He has bouts of nausea all day…”

Owen
“He has been vomiting...He is in a fragile and precarious state and we continue to pray for his full recovery from this horrible accident.

Talon
“Talon is about the same, not bad, not good. He had a rough nite of coughing and suctioning.”

Jordan
“Jordan is stable tonight after a rough night last night and a rough day. She is in the hospital at Cedars-Sinai in Los Angeles (Beverly Hills).” 

Brett
“Brett is having a pretty crummy day. Brett's weight is up by 2 pounds. The doctors feel that it is related to the septic shock or the anti rejection med.”

John
“John had his skin graft done on his leg.  He has been in pain…”

Devonne
“I am more aware than ever that every minute that ticks by is bringing us that much closer to another hospital admission. Devonne is hurting so much…”

Kaycee
“Kaycee has also developed a rash over a lot of her body that has the doctors perplexed.”

Kaitlyn
"I can't put weight on my left leg anymore cuz of the hip. I'm emotionally devastated. The decline has been rapid and I've had pain in the past but it was usually from gj feeds/general stomach aches. I'm still having the belly pain of course, but now the hip/j tube is thrown in, and something's different and to be honest it's scary."

Christine
“Now for the news I never wanted or planned to ever have to share!  I actually have two brain tumors causing the pressure.” 


August 21, 2010

^^Sam^^
“Samuel earned his angel wings at 7:07PM surrounded by his family in his bed at home. Samuel is now healed, cancer free, running on both legs again.”

Reid  
“PRAYER REQUEST!!!! Reid's platelets dropped again today :( He is going to have a platelet transfusion here in a few hours and we pray it's uneventful!! They are going to transfer him to ICU…”
“Reid has had a week and yesterday may have taken a couple years off the old man. He had a platelet transfusion and had a allergic reaction.”

Selena
“IN THE EMERGENCY ROOM RIGHT NOW AGAIN AND THIS IS THE 3RD TIME THIS WEEK THIS IS GETTING SO OLD AND SO TIREING FOR THE FAMILY…”

Cody
“Cody was in extreme pain today. He has been having horrible dreams and is talking whether he should be cremated or buried.”

Bekah
“Nighttime always seems to bring difficulties. The did reduce her feeds to 10ml/hr and that should help the vomiting. Please pray they have a better night.

 
Delaney
“In the hospital…He felt like her gt site was infected and was apparently able to squeeze pus out of it. He squabbed it and sent it for a gram stain and culture. The gram immediately showed white cells and then two hours later started showing that the infection is some sort of staph infection.”

Ryan
“He put packing in one of the open wounds and pushed it through to the other open wound to clean it out and then left some inside the wound to help with the drainage...All while Ryan is awake...”

McKenna
“McKenna had a really rough time today because on top of the new cath being placed, they zapped her with 4 different chemos.”

Elizabeth
“There was no change in the size of the tumor in June (which was the last MRI).  But now, it is starting to grow again.  There will be no new treatments added at this time.”

Courtney
“Courtney was awake all night last night with a nosebleed.”

Codey   
“He was very restless and this morning when I woke him up he had a headache and right jaw pain, probably caused by the Vincristine.”

Katelyn
“First things first, test her marrow for any possible signs of relapse and if it is clear than think about other rheumatic diseases as the cause.”


August 20, 2010 

Jensen
“Downhill is the word of the day.  Last night was rough. Jensen was in a lot of pain and was waking up about every 10 minutes hitting his pain button.”

Taylor
“Thankfully the immediate danger from the allergic reaction…however, as the Benadryl started working, intense pain began all over her body similar to what she has been enduring for several weeks now.”

Amayah
“Amayahs poor little heart is giving us some signs that it is time. We have a plan in place that once her heartrate is at 60 for a period of time we will plan for compassionate extubation for Amayah.”

Nora
“The way they want to do this is in a cath lab which is much less invasive than surgery. They will use an amplanz occluder device to block off her Pulmonary artery. It will just be a matter if she tolerates it or not. They have started her on nitric oxide today. This should help her tolerate the procedure better.”

Tyler
“Ty will have surgery around 11:00 tomorrow morning. After seeing about 10 different doctors/residents who all asked the SAME questions, having an MRI, CT scan, kidney sonogram, and numerous blood tests, they have decided his problems are from a severe blockage in his sinuses.”

Tamara
“Friday morning at 6:45 I have my hysterectomy.”

Devonne
“things have been absolutely HORRIBLE not just for Devonne, but for myself also.”

Bradley
“Please continue your prayers….pain control, his bone marrow to start to generate, his appetite and strength, his spirit, his healing here on earth.  I want my Bradley back…”

Gage
“Not any improvement on the pain. In fact it has gotten worse. Today Gage is out flat and we have needed to start him on morphine.”

Ryan R.
“Well the dreaded fever came on Tuesday night.  It spiked to 101.2 and was 102.6 by the time we got to the hospital.’ 

Cody
“The GI doctor came in And said he saw lining on his CT scan and believed there is in fact mucosa and it us just swollen and bleeding; thus Cody’s blood loss”

Connor
“Connor was admitted to the hospital early this morning due to him spiking a fever.  Yep, it is a big fat bummer!...it is official...........the plate in Connor's leg has failed and he will need to have surgery to remove & replace it.”

Patti
“Patti has pneumonia and has been struggling with it for 2 day's now. Patti also noticed a change in GW. He suffers from headaches, no appetite, and seams to be becoming pail. These are all signs of Central Nervous System Relapse, so she called GW's doctor too.”

Dejon
“He has also expressed concern over a lymph node behind Dejon’s right ear. Last week the lymph node became swollen and hard.”

Tiana
“As things stand now they will scan her Friday…”

Ivory
“Ivory goes for her EKG on Friday at 9 am!!!!”


August 19, 2010

Amayah
“Amayah is home and will never return to the hospital. The rest of Amayah’s life will be for comfort.”

JP
“Not even home for 12 hours and JP started retching.  He wasn't feeling the best when we left the hospital yesterday, but we've had days like that before. Back inpatient as of 12:30 today.”

Brett
“He is still running a fever, high heart rate and respirations. Brett is still grunting. We are all still trying to figure out if it's pain or respiratory.”

Talon
“... still not doing well. 10 liters of oxygen 150 heart rate, slept all day. Mostly awaken by seizures, one was pretty intense. Latest word. his new jg tube seems placed ok seems to have gotten the BIG Pneu again.”


Ryan R.
“Ryan had a CT on Friday the results showed tumor growth in his brain.”

Jenna
“Jenna has really been struggling the last week.  She's had multiple stomach aches, headaches and other mysterious things…”

Nikki
“Nikki continues to be in pain. On Monday she had pump refilled and her spinal cord stimulator adjusted. Her pain has continued to keep her in bed pretty much everyday all day.”

Brandi
“Her tumor has increased by 50% again…”

Katie
“my spine is collapsing, L2 and L3 are ruptured and I need surgery.”

Carrie
“please pray that this antibiotic will clear the current infection, for no new infections, for a decrease in the fever, for line protection and for less pain episodes.”

Ryan
“Ryans counts are quite low. The fever is still low grade, but more than likely he will spike very soon.”

Andrew
“Basically they would like to list him as 1A on the transplant (heart) list.

Elizabeth
“Elizabeth will be having another MRI on Thursday to check the status of the tumor.”  **NEW to Cole’s**

Nolan
“He will have a brain and spine MRI in the morning to take a closer look to make sure everything is fine.  Please pray for no cancer!”

Taylor
“scans lined up for tomorrow (Thur) at 11:30.”

Phillip
“Philip will be seen Thursday by the specialist.  We are very excited and pretty anxious. I can not explain how very important this appt is.  Not only for Philip's physical health bit for his emotional health.”

Justin
“Scans are scheduled for August 19th and 20^th…”

Ella
“MRI on Thursday.”

Amayah
“Amayah is home and will never return to the hospital. The rest of Amayah’s life will be for comfort.”

JP
“Not even home for 12 hours and JP started retching.  He wasn't feeling the best when we left the hospital yesterday, but we've had days like that before. Back inpatient as of 12:30 today.”

Brett
“He is still running a fever, high heart rate and respirations. Brett is still grunting. We are all still trying to figure out if it's pain or respiratory.”

Talon
“... still not doing well. 10 liters of oxygen 150 heart rate, slept all day. Mostly awaken by seizures, one was pretty intense. Latest word. his new jg tube seems placed ok seems to have gotten the BIG Pneu again.”


Ryan R.
“Ryan had a CT on Friday the results showed tumor growth in his brain.”

Jenna
“Jenna has really been struggling the last week.  She's had multiple stomach aches, headaches and other mysterious things…”

Nikki
“Nikki continues to be in pain. On Monday she had pump refilled and her spinal cord stimulator adjusted. Her pain has continued to keep her in bed pretty much everyday all day.”

Brandi
“Her tumor has increased by 50% again…”

Katie
“my spine is collapsing, L2 and L3 are ruptured and I need surgery.”

Carrie
“please pray that this antibiotic will clear the current infection, for no new infections, for a decrease in the fever, for line protection and for less pain episodes.”

Ryan
“Ryans counts are quite low. The fever is still low grade, but more than likely he will spike very soon.”

Andrew
“Basically they would like to list him as 1A on the transplant (heart) list.

Elizabeth
“Elizabeth will be having another MRI on Thursday to check the status of the tumor.”  **NEW to Cole’s**

Nolan
“He will have a brain and spine MRI in the morning to take a closer look to make sure everything is fine.  Please pray for no cancer!”

Taylor
“scans lined up for tomorrow (Thur) at 11:30.”

Phillip
“Philip will be seen Thursday by the specialist.  We are very excited and pretty anxious. I can not explain how very important this appt is.  Not only for Philip's physical health bit for his emotional health.”

Justin
“Scans are scheduled for August 19th and 20^th…”

Ella
“MRI on Thursday.” 

Austin
“Our next exam under anesthesia won’t be until August 16, 2010 with Dr. Gombos in Houston.  Austin will have an MRI, a follow-up exam…”


August 18, 2010

Cody
“I believe that the next two days will be a deal breaker.  I feel it, but can't explain why.  But in my heart, I know we are going to get through this - Cody is the miracle!”

Andrew 
“I think we have had neurology, ophthalmology, pulmonary, cardiology, intensivist or whatever they call the ICU docs all consulting on what to do. EP is discussing medication changes because of increased ventricular entropy… So Andrew gets to spend another night in the ICU.”

Zay
“Zay is still really sick.”

Austin
“Apparently, there are some bleeding that is not visible in the back of his eye…Please keep Austin’s in your prayers that everything will be ok with his MRI and that minor tiny spot is not tumor.”
Jordan
“This morning Jordan was activated for her second double lung transplant.  That means she is at the top of the list and waiting to accept offers.”

Chase
“his next chemotherapy on Wednesday.  Yes, it's a nasty one, too.  5 more days!”

Ben
“HOSPICE has been here and explained their program…”

Nic
“Nic has Graft versus Host Disease and other complications…”

Taylor H.
“Yesterday and today she is home though. Taylor woke up yesterday feeling nauseated and very tired. Today got up still tired, dizzy and had a headache most of the night.”

Taylor D.
“Today Taylor remains in a good deal of pain. From her terrible headache, and bad neck and back pain, to the awful times of shooting pain that strike suddenly and take her breath away, she just feels poorly.”

Alex
“We got Alex's G/J mickey button changed today.  Fortunately and unfortunately it was not out of place.” 

August 17, 2010

Sam
“Breathing is becoming more difficult for him every day. Hospice came to our home this morning and said that Sam can pass really at any time...or it may still be a few days. We are continuing to pray for peace and comfort for our son…”

Stevy  
“Stevy became restless about 1:00 am.  Her breathing was labored, her oxygen level down, practically non-responsive and her eyes rolled back.”

Talon
“Talon is running a 102+ temp., four liters of oxygen, heart rate all day 150-175, and looks a bit uncomfortable.”

Aisylin
“Today Aisy has had a lot of pain and has no energy.  We have had to give her lots of additional pushes of the pain med to keep her comfortable.”

Khloe
“They did say that they are hoping that she can stay stable til tomorrow afternoon. They will be taking her back into the OR to repair then after lunch.”

Chase
“Chase is still not feeling well.  He has a mean case of Mucositis.”

Taylor H.
“The dr called and informed me the cancer is back it is not a lot but it is surrounding her liver.”

Peyton
“So, the rash spread up her body and to her face. Her eyes are definitely swollen and her skin is warm. It is unfortunate but it seems she has developed an allergy to the erythromycin.”

Nolan
“The morning started as usual Nolan puking all the way to the bathroom…Nolan fell over and hit his head on the wall.  I realized he didn't have much balance or control over his body.”

Courtney
“Courtney did not get to go home from the hospital today. She is very disappointed! It looks like it could be a couple more days.”

GW
“Gw is having several bothersome symptoms. First, his balance. He trips and nearly falls several times a day. Second, he has started stuttering.”

Taylor J.
“month post-transplant check-up.  Thoughts and prayers that her counts have returned to normal after this last round of bacterical junk would be appreciated.”

Connor
“We head to Columbus tomorrow for a follow-up with his orthopedic surgeon to check the healing/bone fusion of his leg and the plate position that holds what is left of his femur & tibia in place.:

Taylor D.
“Over the next two weeks Taylor has several important doctor appointments. The most important and scary of which is tomorrow at 12:30. She is seeing a new infectious disease specialist and if past experiences are any indication of what we're in for, it's going to be a very emotionally draining appointment.”

Hilary
“So tomorrow Aug 17th, I will be seeing the cardiologist to check out my valves and make sure they are ok for me to have my back surgery next week. Please pray that the Dr. gives me the ok.”

August 16, 2010

Sam   
“Sam is still fighting. Family members have been taking shifts sitting up with him throughout the night. Breathing pattern is changing. He is currently sleeping peacefully at 7:00AM. Please continue to pray. He is having a hard time "letting go".”
“Sam is currently in the active stages of dying. Hospice said it can happen today or within the next few days. Sam's breathing is very labored, his body temperature is still warm to the touch with cold/clammy hands and feet and his coloring is beginning to change.”

Noah  
“back in the hospital due to a fever”  per Facebook

Stevy   
“She was dealing with several issues today. 

Nic   
“The Resident mentioned during rounds that Nic's condition referring to the brain had worsened over night.”

Katelyn   
“she feels kind of yucky this morning, her throat is very sore, possibly from the methotrexate, she takes 12 pills on Fridays…”

Hannah H.
“We are a go for the stereotactic radio surgery on the 16th at St. Joseph's/Barrows Neurological Clinic.”

Aisylin
“The cancer has spread to every area of her body extensively, mostly in the bones.  We have had to increase her pain medicine to keep her comfortable, but it is getting more difficult…”

Amayah
“Watching Amayah so uncomfortable is just heartbreaking. She has been so miserable that she is back in the hospital in the ICU.”

Ashley A.
“Ashley Kate's triple lumen was just lost. It’s not acceptable for her to be intubated without some form of sedation and at this time we have no way to give it to her.”

Eithene
“We found out that one of the types of bacteria she is growing is resistant to the main antibiotic we depend on for 90% of her infections. Yikes.” 

Devonne
“I know that if we continue on this road that we are currently on, that there will come a point where Devonne's kidney will grow a bacteria that we CANNOT treat. If that were to happen, there would be nothing else that the doctors can do for him.”

Britney
“Britney's port removal surgery is tomorrow morning at Children's. She is very stuffed up and started with a runny nose yesterday (go figure).”

Bekah
“Bekah is still on the bipap.  They tried to ween her off but she went into respiratory distress…”

Hannah M.
“She has a severe rash all over her face, including on her little eyelids and inside her ears. Her face is all puffy, too, from the water retention.”

Declan
“Today, we got the worst news any parent caring for a child with cancer could get…the cancer has spread and there isn’t anything that can be done to stop or cure it.”

Emmy
“she will have scans in NY Monday - Wednesday of next week…”

Justin
“Well this is it...scan week.”


August 15, 2010

^^Amanda^^
“Our SWEET Amanda went to Heaven peacefully at 6:45pm tonight.”

^^Matt^^
“Our sweet Matty went to sleep with his beautiful bride early this morning and at 6:30 went home to be with his Savior Jesus Christ.”

Tiana
“She has not been able to keep her meds down at night so she has not had the medicine in her that helps her with her neuropathy pain, therefore she had a really rough night…Her pain was everywhere so we could not really massage the hurt away like we usually do.”

Nic
“The MRI did show inflammation of the brain and we now have a confirmed case of encephalitis of the brain due to the HHV6 virus and or complication of transplant.”

John Matthew
“I am coming to you tonight to pray for our little HERO.  He is in the hospital tonight.  He was having really bad belly pain and asked to go to the hospital.  He may have a possilbe bowel obstruction again.”

Isaiah
“My poor Zay has just been miserable over the past couple of days...”

Grayson  
"Grayson has been showing signs of seizure activity and his meds may not be working."   Site not updated

Courtney
“Courtney is still in the hospital. We thought she might get to go home on Saturday, but she ran another fever this evening…”

Hannah
“I found out that Hannah started running fevers during the night and got as high as about 103 F.  …the doctor's seem to think this could be her new cells trying to engraft already…”

Brandon
“We met with his stem cell doctor yesterday, and we were again told that the activity on the PET/CT scans most likely indicated the presence of live cancer cells.”

Nikki
“Nothing could have ever prepared us for this much extended journey beyond treatment and remission. She is now 29 months out of treatment and feeling worse then she has since diagnosed 2/07.”

Hilary
“Well I called the cardiology office today…if I need any further testing or need surgery my back surgery is going to be delayed.”

August 14, 2010

^^Tristen^^    
“Tristen is with our Father in heaven” 

Sam   
“Sam woke up this morning gasping for breath...having a very difficult time breathing. He is needing oxygen more and more every day. His disease is progressing very quickly.”

Jessica   
“I ended up having to take Jessica to the local ER yesterday. She had been running a 103 fever and vomiting…”

Amanda
“This is an extremely difficult entry to make…Her body has been thru more procedures, surgeries, scans, injections, transfusions and sooo much more than anybody I know...She is struggling so much right now and we are very sad to update that she will be going to Heaven soon.”

Luke  **LUNG transplant**
“Luke who is 9 and his family just received the call that they have new lungs for him. His mother (who is currently 8.5 months pregnant) and him are currently jumping on a plane headed to Pittsburg where the transplant will take place. Luke has a very rare lung disease that caused his lungs to stop growing. His site is not yet updated.”

Bekah
“she had some distress earlier today and they had to put her back on the bipap.  She may eventually move back down to the PICU.”

JP
“Inpatient, in crisis, miserable - totally a 360 change from yesterday!”

Ryan
“Ryan has now had 3 spinal fluid leaks, attempted to be repaired it is with sadness that I report that the fluid is continuing to leak.Ryan also has now been put in isolation due to a highly infectious infection.”

Ashley
“Ashley is not being discharged today. Shortly after updating CaringBridge last night, Ashley began running a fever of 102.5…”

Ben
“First of all, the doctor told us that the chemo was NOT working.  We were told that the tumors had spread, one of the original tumors had doubled in size, and that the cancer has attacked the spine.  (He already has spinal stenosis.) Ben and the doctor decided to stop the chemo.  I am crushed.”

Nic
“we need your fiercest prayers right now as I face my second biggest nightmare.... neuro damage.  I have just signed consent for Nic to have a spinal tap stat!”

Jensen
“We just sat down with the docs and things have gotten significantly worse since scans on Sunday.  The pain in his right shoulder is due to the fact that his right lung is now full of nodules and fluid.”

Alex
“Alex is having another rough day today.  In fact this morning he could hardly balance himself enough to walk and his speech was very difficult to understand.  We continue to not know what to do.  He continues to have stomach pain on a daily basis.”

Kayla
“Please pray for this horrible psychosis to end so Kayla can finally rest and have a night without bad dreams and NO MORE people telling her bad things.”

Kaycee
“I do need to let everyone know that when Kaycee starts her chemo,(tomorrow) since it is such an aggressive dose, she will probably be pretty sick most of the time.”

Katelyn
“She is still in pain, the inserts will take a while to work I guess, she was in so much pain last night she was crying.”

Julie
“the spots that shrunk last time are now growing and the others are stable.”

Ethan
“Ethan is STILL in a very critical place in his journey. And ONLY a miracle can save his life. I know and fully understand this.”

August 13, 2010

^^Brendan^^   
“Brendan flew into the arms of Jesus at 5:09 am. He is healed.”

^^Gabriel^^
“Our sweet Gabriel Matthew Perkins, born September 6th, 2002 at 8:48pm, so sweet, so full of life, with such a purpose.........closed his eyes, gave his spirit up to our Lord Jesus Christ, and entered the gates of eternity at 12:23am on August 12th, 2010, so sweet, so full of life, and with such a purpose fulfilled!!”

Taylor    
“Kendra and Tay are on the way to ER.  Taylor has been vomiting all night and is having extreme abdominal pain.  Please pray for Tay and for momma, who is pretty scared right now.”

Amayah    
“We moved up  a level on Fentanyl at 5:10pm. Well than we had a Broviac bleeding issue around 6:00pm, than around 8pm she went right to out of control! Thrashing, kicking, screamining, crying and scratching Mom and the nurse.. No relief with that so we were forced to call the Hospice team.”

Nic
“Urgent prayer request for Nic please. He was very, very, disorientated this evening.  Took awhile for him to remember my name and then was very confused about recent events.  He has a fever…”

Jessica
“Jessica was admitted this morning due to high fever and head/neck pain.  Pain has been pretty intense at times.  She will be having a spinal tap tomorrow morning to rule out some concerns.”

Mac
“due to her having bacteria infections in her bloodstream she is having her port removed tomorrow and they will put a central line in as well in the jugglar while she's in the O.R”

Tristen
“Tristen had a tough night – he slept very little. He continues to have problems with the BiPAP machine; his heartbeat changed dramatically the moment they took it back off.”

Todd
“Today, he has continued to feel awful.  Early this morning, he started coughing up much thicker stuff than usual, and it looked very discolored.  Additionally, he coughed up some blood, which has never happened before and it really terrified both of us.”

Peighton
“we have to have the portacath put back in her chest for IV chemo....so we are looking at this coming Friday for that surgery.”

Breanna
“Tomorrow is the BIG day.  Breanna is to have surgery at 7:00 AM to remove her central lines.”

Steven
“Well Steven had to be admitted again on Monday. He was having trouble walking and blurred vision again. So off the ER we went.”

Jessica N.
“Sunday while hiking I fell of a small cliff (about 12ft) and my head broke my fall on some boulders. The fall caused a small crack to form in my skull and some issues there.”

Sam
“It seem's that Sam's disease is progressing. Sam has several "spots" on his abdomen, ribs and in his groin area that we all believe to be cancerous nodules. He is such a skinny child anyway that these "spots" are very visible now. He prayed last night at bedtime and he was begging God to heal him.”

JP
“JP has a fibula fracture! The leg/foot are too swollen to cast…”

Cody   **NO SITE**
“just diagnosed with stage 4 lung cancer…”

Jessica
“We found out yesterday that she now has fractures in T4,5,6,7,8, and 9, with T6 being the worst. I guess that explains why she absolutly CAN NOT stand without being in horrible pain.

Aisylin
“It was unbelievable how every part of her body is lighting up.  The cancer has spread to every area of her body extensively, mostly in the bones.  We have had to increase her pain medicine to keep her comfortable, but it is getting more difficult.”

Lily
“There is nothing like having the wind knocked out of you again.  After our week of scans for Lily, the doctor has given us some bad news.  Results show cancer activity on her skull, in her liver and in the pelvis.

Tyler
“Tyler still has cancer in his right lung. Last week in surgery they removed two nodules out of the upper lobe. There is one (possibly two) nodules in the lower lobe of his lung. There has been growth in the nodule(s) in just the two weeks between scans.”

Jude
“His MRI is scheduled for this Friday at 1pm and then his CT is Tuesday at 12:00pm.”

Kenzie
“We learned her CT scan has been scheduled…FOR TOMORROW at 3:30pm so PLEASE say an extra prayer for her.”

August 11, 2010

^^Walker^^
“Today Heaven has a new angel, and his name is Walker Jack.  Jesus came down Himself to grant our sweet baby his very own set of wings at 10:35AM.”

Amanda   
“AMANDA HAS TAKEN A QUICK TURN FOR THE WORSE TODAY.  WE ARE VERY CONCERNED…HER BODY IS RAMPANT WITH ADENOVIRUS AND SHE IS FIGHTING FEVERS OF 104.” 

Stevy  
“These past 2 days have been eventful to say the least.  Yesterday Stevy was still very uncomfortable and having a hard time breathing.”

Eithene   
“She does have pneumonia, and it appears to be an aspiration pneumonia, which is bad.
She has a significant infection in an abscess around her GJ tube. She has a UTI.”

Bradaigh  
“Well here we are again, in the "Big House!"  Bradaigh has had a cough for a few days and a runny nose.  Later this afternoon he was running a low grade, 100.7, so they instructed us to go to the ER.”

Chase    
“MRI confirmed that the fluid was a pseudocyst off the pancreas.  Today(8/10), Chase went to surgery and had another drain inserted into his abdomen.”

Phillip   **NO SITE**
“Injured in a vehicle accident in the wee hours of Saturday Morning-is in critical condition, multiple brain injuries-in a coma-prayers desperately needed. Phillip is sixteen years old.”

Amayah
“I have always said that Amayah will tell me when enough is enough and she is doing that now. She is now on a home drip of Fentanyl and Versed. All I want is her comfortable. We are making the steps of withdrawing support. This is seriously the worst thing I have done in my life.”

Devonne
“Devonne appeared to be doing a little better going into the weekend, but took a turn for the worse on Sunday when his pain increased dramatically. Since then, he has been in AGONY…”

Jensen
“There is too much tumor to even think of surgical removal right now.  His exact, horrifying words were "it's not curable."” 

Alex
“Another rough day for Alex.  He has been so bloated today that he has been complaining of his stomach hurting all day and I have had to vent him almost every 45 minutes to 1 hour.”

John
“The last two days have continued to be difficult for John.  He has continued to throw up at least twice daily despite still being on all medications.”

Ewen
“Today by far was the WORST time of this cycle, and as Susie and I discussed its only gonna get worse, seems like each time we go he gets sicker and sicker. This time he had 5 episodes of vomiting before we even left the hospital.”

 Tristen
“He said the main prayer right now is to get Tristen stable enough that he could even be transported to another hospital to receive a liver transplant. He asked that we also still pray for his liver. He needs to get stable, stronger, and healthier.”

Matthew
“The results from Matthew's CT scan were not good.  The tumors that were already there are getting bigger, and now there are some new ones around his intestines by his belly button.”

Tiana    
“They began running the chemo around five last night and within seconds of it going into her IV…she became very ill.”

Ken
“Ken is getting weaker every day. He can walk but tries. He has had many strokes and now has altimers. He is sleeping all the time. When I go to talk to him he looks at me like he has no idea who I am.”

August 10, 2010

^^Abby^^
“Our angel went to heaven yesterday.”

^^Chris^^
“Chris's long and painful battle is over.  At 10:33 am he went peacefully with the Lord.”

Hannah    
“Please pray for Hannah...she is having a really rough morning. Dave is with her...he said she is having really bad diarrhea, some vomiting, and she has some bleeding in her belly…”

Ivory  
“Ivory’s fever broke at about 5 am. But its back and the pain in her neck is worse and her one eye is looking. I don’t know what to do from here.”

Tiana    
“They began running the chemo around five last night and within seconds of it going into her IV…she became very ill.”

Aisylin   
“I'm writing with a heavy heart tonight.  Aisylin's pain has been progressing quickly to other parts of her body, and her need for pain medicine has increased as well. The doctors here and Boston have agreed that the only option at this point is to keep her comfortable at home.”

Courtney    
“She is pretty weak and her speech is hard to understand this evening. I also noticed she felt warm a few minutes ago so I checked her temp and it is 101.7. Here we go again.”

Jensen
“was alone in the room with him when the doc came in and told me that he has a large mass on in his chest, one in the lung, and one in the liver.” 

Carrie
“Today has been a "blah" day. Woke up this morning with a sore throat, headache and a little cough.”

Reilly
“Reilly has not felt that great today.  She seems very tired.  Her tummy also hurts.”

Jack
“Tough day, we have had someone in here working him, poking him or something all darn day.  He now has MRSA

Jillian
“Struggling.  My time the last few days has been a bit of a struggle.  Struggling to be comfortable. To sleep , to eat, to just stay awake.  I cannot lay down once again due to pain…”

Heidi
“I write to you with a heavy heart this afternoon. I have been in the hospital away from my family since Saturday...may not seem long...but it's hard when you are a caretaker and then suddenly pulled from that role too and told you cannot do it. I have been told that my infection is a form of a staph infection.”

Lindsay
“Lindsay had a Chest, Abdomen and Pelvic CT scan today and from the looks of it, her lungs are not getting much better.”

John
“We are not out of the wood's yet. John's kidneys are no longer working so we need a kidney transplant. It will take John 2 years before it is safe for him to get a transplant.”

Max
“So, this week is going to be a very tough week on us.  We decided to move the bone marrow tests and chemo to tomorrow.”

Peyton
“Peyton had a horrible myoclonus no sleep night.”

Phillip   
“Tomorrow is a BIG day for Philip.  He has a appt in the morning about getting ready for a BIG procedure.”
Matthew
“Matthew has a CT scan of his abdominal area on Tuesday, and then chemo on Thursday.”

Luke
“The oncologist informed me today that the MRI shows new growth on one side of the tumor.”

Ethan
“I’m in a total state of uneasiness, fear, panic and anxiety about Ethan’s upcoming scans. His tumor markers are increasing at such dramatic rates…”

August 9, 2010

^^Grace^^
"Our Amazing Amanda Grace McGrath was healed in Heaven early this morning. She was peaceful and cradled by love." 

^^Macy^^
"Our little Rockstar Macy began a new tour of her own today.  A tour that is free of cancer, pain, medicines, chemo, dressing changes, etc...  She passed away peacefully in my arms..."

^^Christopher^^
"This evening, our little angel became free of his cancer-ridden body.  He went peacefully with his mom and dad by his side."

^^Jackson^^
"Jackson passed away at 10:02pm last night. (8/6)"

^^Wyatt^^
"Wyatt earned his angel wings this morning."

Ashley
“Surgery has been scheduled for Monday, August 9^th…We pray that when they remove the tumor and look at under the microscope that they are able to tell us that there are no active cells.”

Jeanne-Avery    
“Jeanne-Avery will be having surgery tomorrow at 1pm to remove everything that is infected.”

Eithene   
“Eithene has had a rough first week at home. She is still preferring to sleep 18-20 hours per day, but is slowly getting more strength. A bigger problem is that she has been running pretty high fevers…”

Alex   
“Alex had a rough day again today.  We are doing breathing treatments for his asthma.  His dysautonomia continues to get worse and his speech has decreased a little more…”

Alena   
“The chemo drug ifosphamide can cause the bladder to become irritated and inflamed…”

Ben   
“Thought I'd ask everyone to pray extra hard for Ben.  Even with the new pain med he is still in lots of pain.  I don't know if its getting worse or why it hurts so much now.”

Brandon
"We are hoping to get him on the surgery schedule for Monday for his Medaport to be put in. Since last Thursday he has been on his ventilator 24/7."

Stevy
"Stevy has felt so bad again today.  She had to be put back on oxygen about 2:30 this morning.  She has been in alot of pain."

Owen
"He has a sprained leg, the lower portion of his leg and onloy part that isn't his implant is just so weak...it gave out in the fall."

Aisylin
" He went over the MRI with me.  He showed me the images of her hips and legs from the frontal view and slice by slice.  The healthy tissue is supposed to be white, and diseased areas are black.  The bones in her legs are marbled with black with too numerous to count larger areas."

Taylor
"Taylor needs prayer. We don't know why but she has been dealing with severe stomach upset since Thursday evening..."

Margaret
"i am however sending MANY powerful Prayers that tomorrow will go well for auntie muggs on her 1st day of chemo!!! also finding out the news on the brain MRI!!!!!"

Anthony    
“I got a phone call from the ICU doc at 3am, she called to inform me that Anthony had taken a turn for the worse. She told me that he was not responding to the medications or to the help from the ventilator. It was her professional opinion that Anthony’s body was starting to shut down.”

Tiana    
“The Chemo is really taking its toll on  her this week. The combination of the vomiting and her lack of eating and drinking has left her weak. She is not really talking and is a little withdrawn.”

Courtney    
“Dr. Reddy put Courtney back in the hospital today. She is running fever and very weak. It appears she has a UTI.”

Paula  
“Headed in for another MRI in the morning myself - please pray for calm nerves!”


Fran    **Family friend of Cole’s member, Robin**   
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"We got word this morning that cancer has spread to three places in her brain. We know God is greater and that He is Healer and that He has called Fran His own."

Avery
“We were told the worse possible news yesterday.  The tumor has grown.  Also, to add more heartbreak, Avery has hydrocephalus (water on the brain).  It is so severe that Avery is going into emergency surgery early this morning so they can put a shunt in to drain the fluid to relieve the pressure…”

Jillian
“Just to let everyone know Jill is in the hospital at Lutheran General…the news this morning was not what we had hoped for.  The liver enzyme function has not improved and in fact has increased greatly.”

Jessica
“Jessica has her left knee replacement Thursday the 12^th…”

Emerson
“Yesterday it was confirmed that Emerson has a blood infection which is gram b negative. This is an infection that is pretty dangerous to have but having gram b negative isn’t helping things.”

Brendan
“Brendan continues to sleep most of the day. His breathing, at times, is sporadic so we've been using the oxygen to make it easier for him.”

Ethan
“Say some prayers that Ethan manages without neutrapenic fever...AND for the big day tomorrow.....SCANS!!!!!”

Jeffrey
“our sweet little Jeffrey has two cracks in his upper right femur. He is presently in surgery to put a plate in place to help this heal.”

Alena
“This Friday August 13, is a very big day for Alena and our family. She will be taken to Meridian Park Hospital and have several CT scans, and then we will learn how her abdominal tumor has responded to all of our prayers and the chemotherapy treatments.”

Jensen
“They will not even consider high dose chemo or stem cell rescue because it will likely kill him.  That seems to be the consensus from all docs I have talked to.  We are being pushed to pallative care and it is just sickening to me.”

Dan
“The cells are metastatic cancer cells in his spine. This means that the cancer is coming from "somewhere else" and it has spread to spine.”